Archive | March 2017

The “Kissing Disease” Linked to Some Adult Chronic Illnesses & Diseases

The Epstein-Barr Virus, aka the “Kissing Disease” or “Mono(nucleosis)” has been linked to several chronic illnesses and autoimmune diseases–including Fibromyalgia, Multiple Sclerosis and Cancer; according to an interview with Dr. Henry H. Balfour, Jr. MD, Professor at the University of Minnesota/Lab Medicine and Pathology Department.

Watch this news clip, courtesy of 11alive.com, which interviews Dr. Balfour as he explains his theory:

 

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Mom’s “Last Stand”

December 13, 2017 Update: I received something called a “Minute Order” from the Federal judge after we filed a summary in October (I ended up in the hospital the day before my summary was due, caused by an apparent stress related MS exacerbation). After the summary was filed, I was originally slated to see the judge November 28th, but they called to tell me about the order the day before court.

I was broken-hearted hearted when the clerk told me to be happy I didn’t have to go all the way down to court; and I explained to him that was what I was waiting for this whole time.

From what I understand this is neither good nor bad, but I am preparing for the worst (it’s easier to say ‘no’ if you don’t see someone, right?). I’m hoping that he is going to be in a really good mood and finally award my money to my family and I… but I’m pretty sure it’s going to take a miracle–the SSA told the judge that they were “done” with me too, so yeah.

My only choice after this is Supreme Court–and another fifteen hundred dollar court bill.

You would think someone would notice how long I have stuck with this… How many frauds or liars would spend nearly a dozen years (and thousands of much needed dollars on doctor, hospital and court bills), just to get a few hundred dollars a month?

Only stubbornness, creativity and luck has barely kept our lives afloat financially since I became ill. We have given up a lot that many take for granted. Thank goodness for the internet.

If you are fighting for Disability, please watch your doctors carefully when they keep records (and make sure they have your back at all times)–your livelihoods literally depend on it.


Things have been pretty crazy in my life lately, but I won’t bore you with all of the little details. Here’s a little what has been going on lately:

When I got out of the hospital last Thanksgiving, I learned that my attorney decided he couldn’t “find any more arguments” about my case and quit. After trying unsuccessfully to find a new attorney willing to help me file “on the federal level”, I have decided to represent myself “Pro Se” and will be filing my own arguments. The only catch is that I have only five days left to file.

fdr-ssaMy husband took me to the Federal building last Friday; and when I told the clerk the reason why I was there, she stopped me and said, “Let me ask you something. Do you feel like your civil rights have been violated?”.

I sat there for a second, tears began to burn in the back of my eyes after hearing her say those words and I thought… Did I? Then it all flooded in… I used to get told that I was “too young” all the time when I made complaints of pain. I was noted by doctors to be everything from “well nourished” to “massively obese”. Even my gender has been an issue… The sad fact is that it’s pretty well known that doctors tend to listen to men’s complaints more attentively than a woman’s, because we’re apparently “too sensitive” when it comes to pain.

(Apparently, the only gender in the world able to push a watermelon through a pinhole–with and without medication–doesn’t truly know what “real pain” is. I’m sorry, but as much as I love my husband, I have seen him when he’s gotten a cold or the flu. If I had a dollar for every time he either told me or our children he was dying–or started to write out his will in his “deathbed”–I’d be a multi-millionaire.)

I never really gave the clerk an answer. She just looked at my face and knew immediately. She handed me a form and said, “You put down here what you just told me and bring it back once you’re done to see if we can file a civil rights action.” She also handed me a flyer for a required legal clinic that I need to attend in order to file “pro se” in order to represent myself.

downloadAll weekend my husband and I had been discussing our plans how to handle next week… and praying that my body won’t give out on me beforehand. On Monday we’ll be driving back to the Federal building to take the course, since I am unable to retain the information on my own. Hopefully after that, it won’t be too hard to write my own legal brief.

I’m not sure what the outcome will be when it’s all said and done. Whatever happens will happen; but not for lack of trying.

The Social Security Administration (and some of the words of ex-doctors) may be able to keep my “benefits” from me; but they won’t ever take my spirit. As long as I have a voice, I’m going to continue to use it so that no one ever has to go through what my family has done for nearly twenty years.

be-the-changeIf there is one thing I want anyone to learn from me, it would probably be this: Your doctor works for YOU. If they don’t do the job that you hired them to do–don’t assume they are trying their best–find a new doctor ASAP. You wouldn’t take your car to a shoddy mechanic, so don’t allow the shoddy physicians of the world keep you from getting your answers.

Wish me (us) luck, and please send your thoughts and prayers our way this week. We could use all the positive energy in the world for what we are about to take on. ((HUGS))