Chaos Behind A Smile

I read Susan Williams’ account of her husband, the late Robin Williams’s final months. It’s heartbreaking, yet so familiar at the same time if you live with a chronic illness.

Mr. Williams was a warrior whose mind, body and spirit could take no more. In life, he inspired and filled millions of people with joy and laughter as he performed his many wonderful characters throughout his career. In many ways, his death will have meaning that he probably never anticipated.

66th Annual Primetime Emmy Awards - Show

Photo credit: Lester Cohen/Wireimage

Mr. Williams was living with an invisible illness called Lewy Body Dementia, a neurologic condition that causes a form of dementia that creates the same underlying changes in the brain as Parkinson’s Disease and Alzheimer’s. He was officially diagnosed postmortem. Even though he succumbed to his illness on his own terms his widow, Susan, explains in detail the journey that led to the final months of his life. She showed how difficult it was for him, and for his family, to go through his journey of confusion, cognitive issues, temporary paralysis and more.

Everything the public never saw.

She showed us, through the eyes of a caregiver, the life of a human being that was living with a debilitating chronic illness.

PLEASE, read Mrs. Williams’ story. I promise, it will open your eyes – and your hearts – to a world that healthy people, luckily, never have to experience.

It will teach you how easily a smile can fool the outside world into believing that a sick person is fine.

Do me a favor. After you read the story, share it with your friends and loved ones. While you’re at it, give them a hug – remember how precious life, and good health, truly is.

Rest in peace, Mr. Williams. Your light will be in our hearts and laughter for eternity.

To learn more about Lewy Body Dementia (LBD), click here.  

To donate to the Lewy Body Dementia Association, click here.

***

Some notable people who suffered from Lewy Body Dementia include:

  • Actress Estelle Getty
  • Music industry icon Casey Kasem
  • Athlete Stan Mikita
  • Artist Don Featherstone, creator of the iconic lawn flamingo
  • Former NBA head coach Jerry Sloan
  • Actor Robin Williams
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